JOIN OUR WORLDWIDE EVENT ON FRIDAY 29TH MAY

We want to see the whole world Go Orange for PWS on this date, so please tell all your friends and family to join our event and post images of yourselves and how you’ve “gone orange for PWS”.

It just takes one little click and you’re already helping support people with PWS.

When to Go Orange for PWS

Friday 29th 
May
2020

All through the month of May, and especially on Friday 29th May, wear or ‘do’ something orange to show your support of those living with PWS and raise awareness for their cause.

Take photos and share on social media using the hashtags #goorange #goorangeforpws #pws #pwsawarenessday #praderwillisyndrome #praderwillisyndromeawareness #ilovesomeonewithPWS

About the cause

What is Prader-Willi Syndrome (PWS)?

PWS (Prader-Willi Syndrome) is a rare and very complex non-inherited genetic disorder in which several genes on the 15th chromosome are deleted or unexpressed. The common characteristics of PWS are small hands and feet, abnormal growth and body composition (small stature, very low lean body mass and early onset childhood obesity), hypotonia (weak muscles) at birth, insatiable hunger, extreme obesity and intellectual disability. In recent years, the syndrome has been genetically characterised as an abnormality of chromosome 15, and definitive diagnosis is now based on genetic testing.